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Mr S

Mr S | Review left on Trust Pilot

My Mother entered a nursing home in 2014 with Alzheimer’s disease. As she deteriorated, CCG meetings were held annually to assess the level of care funding she could receive or, as in her case, not receive.

The CCG had declined to pay my Mother continuing health care several times as they said ‘she doesn’t have a primary health care need’. Through frustration and desperation, I contacted Compass and they were supportive throughout every stage of the process.

They called for another DST and a Compass advocate attended. The CCG declined again but Compass advised us to appeal as they felt my Mum had a primary health care need and the scores demonstrated this. We appealed and again an advocate attended. Once more we were declined. I felt like giving up but Compass supported me and I decided to keep going. There was another review and finally the case went to an independent review panel through NHS England. An advocate from Compass supported me at the meeting.

Throughout the process, Compass advocates met with me either for pre briefings and debriefs. I felt supported throughout.

Eventually, after nearly 3 years of challenging the CCG, the decision came back at the final stage of the process.

The CCG’s decision was found to be unsound. If it wasn’t for the support and guidance from Compass, the severity of my Mother’s condition would not have been fully acknowledged and her award of CHC would not have been achieved. Her CHC funding was backdated to the DST first attended by Compass.

Thank you to all involved from the advocates to the support staff who meticulously work to fully understand my Mother’s condition. Without you we would have given up hope and stopped challenging their decisions.

I would encourage anyone who feels they aren’t being heard by their local CCG to contact Compass to see if they can help you too.

Please click here to view the above review on our Trust Pilot page.

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